Showing posts with label pfapa. Show all posts
Showing posts with label pfapa. Show all posts

Tuesday, March 29, 2011

Hello, Steroids!

You ever seen a 5 year old on a major steroid high?

It is a sight to behold.

Ty's doctor thinks he has something called PFAPA, which causes him to have a fever for about 4 days every 3 weeks or so. When we were in for Ty's well visit a couple of weeks ago, Dr. P. said if that is what it is, we could give him a mega-dose of prednisone as soon as the fever started, and it would knock it out in 24 hours.

Fast forward to this past Friday....

We were having "one of those" mornings, so I didn't take Ty to preschool. He ended up at his nanny's house playing. Peggy called me and asked if I had any tylenol bc he was starting to run a fever. She came to get the tylenol, and I asked if she minded running and having the prednisone filled so we could try that. Now, we're talking a huge dose here; he had to take 2.5 tsp at once. We thought he wasn't going to get it all down without throwing up.

For the next 2 days, that child was WILD. He slept at night, but when he wad awake, he could not be still or quiet. He talked non-stop. He moved constantly. He looked around the room with a wild look on his face, breathing hard, trying to figure out what to do next. Which is so not Ty. (Heaven help us if Troy ever has to take it!) He was in fast forward all day, running on nervous energy.

But his fever went away.

I think things are pretty much back to normal again. Hoping this doesn't happen too many more times. I don't know how many rounds of mega-steroids we can stand!

Saturday, March 12, 2011

Doctors, Doctors Everywhere

What a week this has been!

Of course, Wednesday Ty had to go to the cardiologist. Thank goodness everything was alright there. Then Thursday, he and Audrey both had their well visits with Dr. Parmer. I am so glad that it was a rainy day so that Jeremy was able to go with me.

Both kids did well at the doctor's. They are both growing so much! (and of course, Troy is, too!) Ty was 41 lbs (which puts him in the 75th percentile) and only lacked 3.5 inches being 4 feet tall (90th %)! Audrey was 18 lb 8 oz (95th %) and 27.25 inches tall (95th %).

Audrey had to get 2 shots. She got so mad about having to be held down. She turned beet red and screamed her little loud lungs out. After we let her up she was fine. Just like flipping a switch.

They think Ty may have to have glasses. We are supposed to have an appointment being set up with the eye doctor sometime soon. This should be fun.

He also said he thinks Ty has something called PFAPA syndrome, and that this is what is causing him to keep getting fevers. He gave us a prescription for a mega dose of steroids to try if it happens again.

Yesterday, Audrey got to coughing pretty bad. She had had a runny nose the day before, but nothing major. And we also found out our friends' kids have RSV....so hoping that's not the case with Audrey, although we are treating it like it is for now. We are going back and forth about whether to take her back to the doctor tomorrow. We have been giving her medicine, per the on-call nurse's orders last night. But I still don't know if she needs to be checked out or left alone, if it doesn't get any worse. One of the tough parts of being a parent. *sigh* She has coughed till she is hoarse. And Troy is coughing and snotting, too.....

Wonder what tomorrow will bring???